The parents of a 12-year-old boy are pushing for change after their son died from a brain-eating amoeba after swimming in a South Carolina lake. The Carr family says they want more water testing and awareness about the dangerous infection.

South Carolina

The parents of 12-year-old Jason Carr are advocating for policy changes and increased water testing after their son died from a rare infection caused by the brain-eating amoeba Naegleria fowleri. Jason became ill with a headache after swimming in Lake Murray, South Carolina, and died two weeks later despite medical attention.

Naegleria fowleri is typically found in warm, fresh water and infects people when water enters the nose. The Centers for Disease Control reports fewer than 10 cases annually in the United States, with most being fatal. The Carr family is pushing for more routine testing and public reporting, as current state and federal guidelines do not require regular monitoring for this organism.

Family raises awareness after son dies from brain-eating amoeba

We have a warning from the parents of a 12 year old boy who listened to this. He died after swimming in a popular South Carolina lake. Doctors say a parasite in the water led to an infection that is rare but extremely deadly. Skylar Henry spoke to Jason Carr's family as they call for change. Skylar, good morning. Hey, Adriana, good morning to you. Jason's parents, Ebony and Clarence Carr, are calling on state lawmakers to revise policies and do more testing on the waterways here in the state of North or South Carolina. And they're also calling for more public reporting of the infection of the organism that killed their son. They're also looking to raise awareness so that no family has to go through what they are. No one should have to assume their child might not come back from just swimming and having fun with friends. 12 year old Jason Carr was enjoying summer before the July 4th holiday, swimming in South Carolina's Lake Murray, about 15 miles outside Columbia. Days later, he told his parents he had a headache. He never complains about anything. So we knew when he started complaining that something was wrong. Clarence and Ebony Carr gave him some medication. The next day, they took Jason to the hospital where he was able to walk in on his own. He died two weeks later. Hindsight 2020, this was no headache. He was being attacked. Carr was infected with niglaria fowleri, a brain eating amoeba found in warm, fresh water like lakes or rivers. It enters through the nose, usually when someone jumps or dives in the water. The Centers for Disease Control reports fewer than 10 cases each year in the U.S., but nearly all are fatal. And it is the job of state and local health departments to test fresh water, but they don't have unlimited resources. You can't test for everything. You have to focus on the most common things and the most dangerous things. And unfortunately, this infection is not common enough to be doing routine testing. The Carr family is now pushing for more water testing and spreading the word about the dangerous infection. What is this last several weeks been like? The worst moments of our life, a nightmare that I'm still waiting to wake up from. We just went back home a couple of days ago just from knowing the memories that we have there with him and knowing that waiting on come through the door. And they say that what they will miss the most is Jason's smile. Now, state officials did say that the exposure likely did happen at Lake Murray, but there are no federal recommendations to test for that ambient sample water for Naegleria Fowleri. And there are no scientific thresholds for determining any sort of unsafe levels of the amoeba in those waters. Vlad. Absolutely heartbreaking, Skyler. All of our hearts go out to that family. What a beautiful little boy. Thank you very much for your report.

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