The Trump administration has announced a new program that will let Americans share their health data across private apps and systems. CBS News medical contributor Dr. Celine Gounder has more.

Washington

The Trump administration has announced a new program designed to allow Americans to share their health data across private apps and digital platforms. The initiative seeks to address the longstanding problem of fragmented health records, making it easier for individuals to access and manage their medical information through partnerships with companies like Google, Amazon, and the Cleveland Clinic.

However, privacy advocates have expressed concerns about the potential for data breaches and misuse of sensitive information, as many consumer health apps are not regulated under HIPAA. There are also ongoing legal challenges regarding the use of health data for purposes such as immigration enforcement, and questions remain about how companies may use or sell this information. The administration has also called on drug companies to match the lowest global prices for medications, a move that has met resistance from pharmaceutical manufacturers.

Trump administration rolling out health data sharing program

The Trump administration is rolling out a new program that will let Americans share their health data across private apps and systems. The goal is to make it easier to access medical records and track wellness, but privacy advocates say the move could lead to data breaches and the misuse of sensitive information. CBS News medical contributor Dr. Selene Gounder joins me now. So, Dr. Gounder, what problem is this trying to solve? Is there a problem this is trying to solve? Well, there is a problem because we have our health records sort of in silos at different doctor's offices, at different hospitals, and we don't communicate very well and share that information. A lot of times it's still based on faxing old records. So, it is trying to solve for a real problem. What would it mean for real people, basically? Well, you tell me. Well, you know, this partnership, this digital health ecosystem includes partners like Google, Amazon, Noom, the Cleveland Clinic. So, it would allow for more sharing of information, not just across healthcare systems, but also with these new digital health platforms. And a lot of those are in consumers' hands on their smartphones. So, like, say you want to be managing your diet and your exercise and tracking things like your continuous glucose monitor and your insulin, you know, all of that, you can do so much more easily. Downside, what's the possible downside? There are some very real privacy concerns here. So, many of these apps, these companies, are not regulated the way doctors and hospitals are, okay? So, they don't have to protect their- Which is why we have all those forms, all the- Which is why we have those forms. You know, people will have heard of HIPAA. Guess what? These apps are not governed by HIPAA. And so, we are concerned that they may have data breaches. We've just seen that with the tea dating app. There were some security breaches. Consumer health apps, a lot of them make money by selling your data. So, what are they gonna do with that? We also are concerned about other forms of data misuse. So, for example, there are over 20 states now that are suing the Trump administration over using Medicaid data and giving that to ICE for immigration enforcement. And you say, I'm not an immigrant, how does this apply to me? Well, they could give that data to the DEA, to the ATF, to the IRS. So, there are very real concerns for the average person there. Now, we're gonna pivot really quickly with the short time we have left, which is that the president said to a number of drug companies, basically, you've gotta match the lowest price of your drug anywhere in the world. What's that gonna do? Well, in the US, we pay up to three times as much for many of these medications, insulin, cancer drugs, as do people in other high-income countries, say in Europe. And so, the idea would be to extend those lower prices to people on Medicare, Medicaid, their employer insurance. But we're seeing many of these drug manufacturers pushing back hard, saying that this could hurt research. And so, we'll see who wins out in all of this. Some of the most, most of the, many lobbyists in Washington work for drug companies. Dr. Celine Gallagher, thank you.

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