Courtney Leader is a mother of five children, one of whom has cerebral palsy and relies on Medicaid assistance in addition to private insurance to help keep her daughter alive.

Missouri

Families in Missouri are voicing concerns about the potential impact of proposed Medicaid cuts, particularly for children with severe medical needs. Courtney Leader, a mother of five, relies on Medicaid to cover essential medical supplies and care for her daughter with cerebral palsy, as private insurance does not cover all necessary expenses. Senator Josh Hawley has highlighted her case in the broader debate over federal spending and healthcare funding.

Rural hospitals and food assistance programs are also under threat from possible budget reductions. Hospital administrators warn that cuts could force closures and limit access to maternity care, while food pantries report rising demand as more families struggle to afford basic necessities. Advocates stress the importance of understanding who relies on these programs and the real-life consequences of funding decisions.

Medicaid cuts are life and death for this family in Missouri

I know that they're saying that they're not planning to cut Medicaid, right? I reached out, concerned that if any changes are made, there will be this trickle-down effect that will impact families like mine. The front lines of the Medicaid debate are right here in Courtney Leader's kitchen. What is the face of Medicaid, do you think, and is it different than you think some people may assume? I mean, we are the face of Medicaid. The Missouri mother of five wrote her Republican Senator Josh Hawley to explain how slashing benefits would be devastating to her nine-year-old daughter Serena, who lives with brain damage and cerebral palsy. Our private insurance won't cover the formula, it doesn't cover the feeding tube pump. The hit on our budget, it would be over $1,500 a month just for the formula, just for the pump rental, and those are things that we have to have to keep my daughter alive. Without that, she's not eating, there's no way to get nutrition into her, so it's really a lifeline for our family for her to have that feeding tube. Hawley has cited her story, emerging as a rare Republican critic of cuts to Medicaid in rural hospitals, all part of a monumentous tug-of-war over paying for President Trump's agenda. Oh, there's my beautiful smile. Hawley came along for the ride, sitting behind Serena's nurse, who's funded by Medicaid, as they drove to weekly therapy sessions, also paid by Medicaid, which more than one in five Missourians rely on for health coverage. Being a mom is not political, but this debate is political. How do you navigate the politics of this as you advocate? I mean, I just keep consistency. I share the same story to people, regardless of what side they stand on. We cannot let people like my daughter lose her benefits. And if anybody tells you that, oh, she's covered, she's protected, I would really encourage you to say, how? What provisions have you made to make sure that those who meet eligibility requirements are covered? Good morning. How are ya? Shelley Jones has an infectious smile as she hands out food to a growing number of people in need, as deep cuts also loom for federal food aid. Do you expect that it's tough for some people to ask for help and come here? Oh, 100 percent, yeah. But they make it so nice and easy for you and accessible. We visited Ozarks Food Harvest, which distributes food across one-third of Missouri. What is the demand like for food? Unfortunately, Jeff, right now, the demand for food is quite a bit higher than it was even at the height of the COVID crisis. Sixty percent of the folks that use SNAP for food pantries are from working families, and the other 40 percent are from seniors or children under the age of 18. Congress is weighing billions in cuts to food assistance programs like SNAP, once known as food stamps. That will increase demand at already-crowded food pantries like this. How important is this food to you? Well, it really helps us get through the month, and they have a good variety of things, so, and especially the fresh fruits and vegetables, I really like those. Your husband got hurt in an accident? Yeah, he fell between 10 and 11 feet, land on top of his head. But it kind of changed everything. We were in the process of getting all of our ducks in a row, so to speak, for retirement, and then he got hurt really bad, and it just upside downed everything. And so food pantries do that, have helped us through the situation. Another hotly-contested piece of the spending bill is deep cuts to rural hospitals. Inside a maternity ward in Clinton, Missouri, Dr. Jennifer Blair worries for her patients. Missouri has the fourth-largest number of maternity care deserts. We actually are surrounded by several maternity care deserts. Defined as a county that has no or very limited access to obstetric services for their patients. If we were to lose that access, the birthing center here at Golden Valley, our patients would have to travel more than 60 miles to receive those services. Four out of five babies that are delivered in our hospital are covered by Medicaid. And that's not unique to us. Craig Thompson is CEO of Golden Valley Memorial. He said many rural hospitals in Missouri and across the country are at high risk for closure. Is your hope for what happens over the next couple weeks in Washington in this debate? Well, I think the thing that, again, would be beneficial is for better understanding of who Medicaid serves and what the real Medicaid face looks like. Because, again, I think that's been lost somewhere along the way. Courtney Leder shares that hope, too. It's not a luxury. This is not a luxury. I do not have my daughter enrolled on Medicaid so that we can have fancy things. I have my daughter enrolled in Medicaid so that we can keep her alive. What do you worry the most about what could come out of this bill being debated in this new budget? Is it the cutting finances or more red tape? Or what do you worry about the most? I'm worried that the red tape is going to affect our Medicaid because of just the oversight burdens and that, as a result, I'm going to lose my daughter. Jeff Zeleny, CNN, Springfield, Missouri.

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